Multiple Myeloma Resources
Community Links ›
The Community Links tool was created to help organize websites on the internet by topic and rating. Although, we hope you find MyMultipleMyeloma.com informative and supportive, we don?t believe any one website can provide everything a patient needs on their multiple myeloma journey.
Organizations
American Cancer Society
1-800-227-2345
www.cancer.org
The American Society of Clinical Oncology
1-888-651-3038
www.cancer.net
Association of Cancer Online Resources
1-212-226-5525
www.acor.org
CancerCare, Inc.
1-800-813-4673
www.cancercare.org
CancerCare's Door to Door program
1-800-813-HOPE
(1-800-813-4673)
International Myeloma Foundation
1-800-452-2873
www.myeloma.org
Leukemia and Lymphoma Society
1-800-955-4572
www.leukemia-lymphoma.org
Multiple Myeloma Research Foundation
1-203-972-1250
www.multiplemyeloma.org
National Cancer Institute
1-800-4-CANCER
(1-800-422-6237)
www.nci.nih.gov
View all ›
Financial Resources
There are also many federal and state programs that are worth discussing with your oncology social worker, including the following from CancerCare.
View all ›
Caregiver Resources
Being a Caregiver ›
As a caregiver, your role is varied and may change from day to day and throughout the course of your loved one's condition.
Caregiving 101 ›
Because multiple myeloma is a progressive condition, your loved one's needs will likely change over time. So, being flexible will be key in your role as caregiver.
Be Active & Supportive ›
Maintaining a sense of normalcy and providing a listening ear are important jobs of a caregiver.
Staying Informed & Organized ›
Given the complexities of multiple myeloma and the available treatment options, clear and frequent communication between you, your loved one, and their healthcare team is critical.
Take Time for Yourself ›
Caring for a loved one with multiple myeloma can be a rather challenging full-time job. You have less time for yourself, and more stress. But there are also many fulfilling aspects to being a caregiver. Every day, you are doing something to improve your loved one's quality of life and well-being.
Take Charge of the Future ›
The "future" is a big concept for someone living with multiple myeloma. It's an unknown and it can be scary. But by planning ahead you can ensure that your loved one receives the type of medical care he or she wants and relieves you and other family members of guessing at what should be done.
