Letter from Nurse Krista Tucker

Myeloma Educator

I'm Krista Tucker, and I have been working as a nurse with myeloma patients for more than 20 years. As a multiple myeloma expert, I've learned that many patients don't have multiple myeloma symptoms until their disease has reached an advanced stage, so you may be entering this conversation with a prognosis that seems very intimidating.

I know the journey won't be easy. But sooner rather than later it's worth the effort to "Take Your Best Shot" -- to take charge of your disease by increasing your understanding of your multiple myeloma, surrounding yourself with people who can help and support you, and educating yourself on treatment options, right down to the financial aspects, so that you and your healthcare team can form a treatment plan that's right for you.

I've cared for many wonderful people with multiple myeloma, and I've seen many different approaches to dealing with their disease. I know how tough it can get, but it pays to stay positive! It's a journey that demands your energy, engagement and determination. You've got to take charge and stay involved in your care.

You need to line up the best team possible to guide you through this journey! Choose your healthcare team and support your diagnosis. Then work through the details with your oncologist about what is right for you, and know that it's okay to get a second opinion when you have questions about treatment decisions.

Some patients find it helpful to write their questions down before meeting with their healthcare teams. Consider bringing a caregiver with you to your doctor visits to help ask questions and take notes. Your caregiver can be in charge of capturing the information accurately while you, the patient, focus on what the doctor is saying. If taking notes isn't your thing, ask your doctor if he or she is comfortable with you bringing a tape recorder so that you can later re-play what was said at your appointment. A new patient resource, www.MyMultipleMyeloma.com, has more tips from real patients about key questions to ask of your healthcare team.

Important Steps When You've Been Diagnosed with Multiple Myeloma

• Start doing your research immediately to gain a firm understanding of your disease.
• Educate yourself regarding your treatment options, and work with your healthcare team to set goals that you believe can be reached.
• Carefully select your cancer team and support system.
• Consider seeking second opinions for diagnoses and treatment recommendations.
• Know the costs of various treatments and available resources.
• Seek out resources for physical, financial and emotional support from your treatment center and community.
• "Take Your Best Shot"

I wish you the best of luck in your journey.

Krista Tucker